May 24, 2026

Lived Experience of Lewy Body Dementia Shared on RTÉ Radio 1

A recent clip from the RTÉ Radio 1 Brendan O’Connor Show highlights a deeply personal and important conversation about living with Lewy body dementia. The segment features members of the Stewart family, who share their lived experience of supporting a loved one through diagnosis, progression, and day-to-day life with the condition.

In the discussion, the family reflects on the emotional and practical challenges that come with caring for someone affected by Lewy body dementia. They describe how the illness has reshaped family life, requiring ongoing adaptation, resilience, and support. Their story offers a candid and human perspective on a condition that is often under-recognised and misunderstood.

The conversation also highlights the importance of communication, awareness, and community support in navigating dementia care. By openly sharing their experiences, the Stewart family help to reduce stigma and bring visibility to the realities faced by many families across Ireland.

Listen here: "It's an ambiguous loss - we are in the middle" | Brendan O'Connor - RTÉ Radio 1

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