Why it matters

Despite being the second most common form of dementia after Alzheimer’s, Lewy body dementia is often misdiagnosed — or not diagnosed at all.

LBD is frequently referred to as “the most common form of dementia no one has heard about.” EMERALD-Lewy was created to change that.

We are here to raise awareness, improve diagnostic pathways, and shape better care and policy through collaborative research and patient-centered design

What makes us different?

What sets EMERALD-Lewy apart is its interdisciplinary and person-centred philosophy. We work across medical, psychological, and social fields — and integrate the arts into our work, thanks to strong ties with the Global Brain Health Institute at Trinity College.

We are currently developing projects that bridge neuroscience with photography, theatre, writing, and performance — all with the goal of humanising dementia and reducing its stigma.

Scientific Advisory Committee

We are guided by a distinguished international Scientific Advisory Committee with expertise across neurology, psychiatry, nursing, and patient advocacy

Psychiatry of Old Age
Professor John O’Brien
Psychiatry of Old Age
Professor Dag Aarsland
Psychiatry of Old Age
Dr Panagiotis Alexopoulos
Neurology
Dr Conor Fearon
Psychiatry of Old Age
Ms Jacqui Cannon
Nursing
Ms Rachel Thompson
Professor John O’Brien
Psychiatry of Old Age
Professor Dag Aarsland
Psychiatry of Old Age
Dr Panagiotis Alexopoulos
Psychiatry of Old Age
Dr Conor Fearon
Neurology
Ms Jacqui Cannon
CEO of Lewy Body Society UK
Ms Rachel Thompson
Nursing

Programme Steering Group

Psychiatry of Old Age
Professor John O’Brien
Psychiatry of Old Age
Professor Dag Aarsland
Psychiatry of Old Age
Dr Panagiotis Alexopoulos
Neurology
Dr Conor Fearon
Psychiatry of Old Age
Ms Jacqui Cannon
Nursing
Ms Rachel Thompson
Ann Nolan
Anusha Yasoda-Mohan
Claire Gillan
Eben Stewart
Emma O'Shea
Iracema Leroi
Irina Kinchin
Joseph Kane
Roman Romero-Ortuno
Sean Kennelly
Suzanne Timmons
Nicholas Johnson
Niall Pender
Biswajit Basu
Ronika Chakrabarti

Research Team

Psychiatry of Old Age
Professor John O’Brien
Psychiatry of Old Age
Professor Dag Aarsland
Psychiatry of Old Age
Dr Panagiotis Alexopoulos
Neurology
Dr Conor Fearon
Psychiatry of Old Age
Ms Jacqui Cannon
Nursing
Ms Rachel Thompson
Ciara Gibbons
Clinical Research Fellows
Lordana Frau
Postdoctoral Researcher
Aoife O'Brien
Research Assiant
Patrick Chirilele
Research Assiant
Shakira Browne
Research Assiant
Adele Ravelli
PhD Student
Ellen Moore
PhD Student
Charlotte O'Reilly
TRDA PhD Student
Méabh McCrystal
TRDA PhD Student
Nada Asar
TRDA PhD Student
Priyanka Nandakumar
TRDA PhD Student
Alessandro Chiesi
Master Student
Nishka Mishra
Master Student

Knowledge Translation Teams

Psychiatry of Old Age
Professor John O’Brien
Psychiatry of Old Age
Professor Dag Aarsland
Psychiatry of Old Age
Dr Panagiotis Alexopoulos
Neurology
Dr Conor Fearon
Psychiatry of Old Age
Ms Jacqui Cannon
Nursing
Ms Rachel Thompson
Jenny McDonald
Cara Partner Drama Workshop
Nicholas Johnson
Cara Partner Drama Workshop
Phil Kingston
Cara Partner Drama Workshop
Alex Kornhuber
Keepsake Chronicles
Cathy Fowley
Keepsake Chronicles
Kate Irving
Keepsake Chronicles

Our four workstreams

The project is structured around four interconnected workstreams, each grounded in the Living Well Framework for Dementia.

Working together for change

EMERALD-Lewy is made possible through collaboration with a wide network of researchers, clinicians, organisations, and advocates.
Learn more about the partners involved in supporting this work.